Lola Germs - 2024-07-05
*Why does everyone keep getting sick? Spring flu, summer flu, concert flu, colds, endless coughing, mysterious bugs, allergies - why do our immune systems suck now?? What's with all the new health issues like diabetes, high cholesterol and fatigue? Why are more athletes having heart attacks? Why do so many have brain fog, memory problems and can't think as well as before? Is our gut microbiome health worse? Are we all just more tired and ill than before for no reason?* Well, spoilerโ it's not "lockdowns" or "immunity debt" or "thejab" or not exercising or not enough essential oils or vitamins or natural remedies or not thinking enough positive, high-vibration, wellness thoughts. It's something you may have never even heard of thanks to public health and governments not doing their jobs, but something you've probably already had a lot of encounters with, something you know ~deep down~ is not as over as the mainstream media or your profit-minded employer says it is, something that will not go away just because we wish it really hard.. This video essay offers a useful primer to this syndrome that is already affecting tens (likely hundreds) of millions of people across the world. Please share this information with your community and advocate for authorities to start taking our health seriously, because we all deserve so much better.. Subscribing, liking the video and commenting also helps out in satisfying the Youtube gods and getting this content to reach more people. If this is your first time hearing about it, your emotional impulse might be to say that it can't be real, that it must be an exaggeration or conspiracy. If that's the case, we assure you we have only used high-quality, credible, reputable sources and research, which we recommend checking out in the reference list below. The PDF has short summaries for all the studies included, to make it as easy to understand and accessible as possible, with some bonus resources for those of you who like deep diving into topics. ๐, ๐ท & ๐ฏ Reference list: https://www.dropbox.com/scl/fi/d4dzdprw7rrcdsii6xvlq/Lola-Germs-Reference-List-light-mode.pdf?rlkey=ufy6cp1kq7qd1b6ovhko938o1&st=oettjgvf&dl=0 Dark background version: https://www.dropbox.com/scl/fi/qxr3v7bu77ldtbvdkxwyr/Lola-Germs-Reference-List-dark-mode.pdf?rlkey=whw7etc86cyx5m2iv5tga0h3l&st=1dt7i13d&dl=0 ๐ If you found this video useful and would like to chime in to help keep this project going, you can support by donating via Ko-fi (and get some perks too): ๐ Ko-fi: https://ko-fi.com/lolagerms (Patreon not currently active) !! Follow LolaGerms on: Instagram: https://www.instagram.com/lola.germs/ Tiktok: https://www.tiktok.com/@lolagerms !! More resources: Linktree: http://linktr.ee/lolagerms !! Check out more videos! Playlist on how masks work and how to fit test them to make sure they seal, different international names for respirators & more: https://youtube.com/playlist?list=PLPNcdxhQxkygKVw60upLb4LPzIWqfdKlM&si=-2dz92Wl9az-I8Xc More science explained videos: https://youtube.com/playlist?list=PLPNcdxhQxkyg2EDShXe7mvx9ZOz6gu__X&si=l5CTgTTuqBGAUNi- It's airborne: https://youtube.com/playlist?list=PLPNcdxhQxkyhgzUwvL3JEjt8H5i4qoR3u&si=1M7XtDJBEIQQfp5U !! Check out how you can get involved in your community: https://www.instagram.com/covidactionmap/ !! If you'd like to help with translating the video, the timed script is in the linktree. Huge thanks to Jacob for the German subtitles and to Tokalaboki & Marilyn for the Greek ones! ๐ NO MUSIC version: https://www.youtube.com/watch?v=0Iwg7OsHJ7I Image credits: https://tinyurl.com/57ybwbvu 00:00 - 00:54 Intro 00:54 - 02:05 What is long COVID? 02:05 - 05:04 What is LC, more specifically? 05:04 - 10:20 Some people are very ill (ME/CFS) 10:20 - 11:51 Who counts as having LC? 11:51 - 16:45 Why doesn't anyone I know have LC? 16:45 - 21:00 Why doesn't my doctor know about LC? 21:00 - 24:00 The vax and relax strategy is wrong 24:00 - 28:14 Being fine now โ fine forever 28:14 - 35:30 What the AIDS epidemic can teach us 35:30 - 41:39 Won't the government just fix it? 41:39 - 45:06 Canada is doing what to "fix it"?? 45:06 - 51:22 It doesn't have to be like this 51:22 - 54:54 Recap #immunity #health #wellness #medicine #vitamin #vitamins #medicine #medical #clinical #doctor #guthealth #insomnia #depression #anxiety #adhd #natural #naturalremedies #naturalremedy #diy #podcast #sick #fatigue #exercise #flu #cold #immunesytem #publichealth #videoessay #commentary #crashcourse #summerflu #springflu #allergies #mindset #positivity #education #educational #science #research #stomachbug #tired #tiredness #fatigue #brainfog #memory #ibs #diabetes #cholesterol #heartattack #cardiovascular #bloodclots #ms #multiplesclerosis #HIV #EBV #HPV #autoimmune #autoimmunity #autoimmunedisease #disease #illness #ill #sickness #disability #ableism #advocacy #activism #breadtube #discourse #debate
after the nightmare of the recent Supreme Court of US decisions on presidential immunity and executive agencies, seeing someone talk so well and engagingly about COVID is giving me some comfort. thank you for your work!
I can relate :( hopefully, if enough of us try, we will build a better world. thank you so much for watching! ๐
i agree. not trying guarantees nothing changes and condemns us to things getting worse. โcollective care is one of the most powerful things in the world imo and i think is key for moving forward.@@LolaGerms
@@stinkysquash 100% !! ๐
Never vote people who tell you to put stuff into your body and then go on recommending it. Vote those who do not want anything to do with such non sense instead.
Bet the "influencer" is being retained by the pharmaceutical industry.
It is so unbelievably depressing and frustrating to be constantly gaslit by everyone around me when I know that covid is still everywhere.
I know what that's like ๐ being in community with other people who care and who are not in denial of reality has been truly a vital source of support for me, so I'd highly recommend connecting with others who are feeling the same way. Thank you for watching ๐
this is so comprehensive on how Long Covid manifests in many different organs and shows up in different timelines, the sociology and politics of healthcare and pandemic response, collective apathy, and the power of trying to make a bad world slightly less bad rather than giving up and ensuring more suffering. A+++++++ this is an incredible achievement that I think tens of thousands will eventually see!
Wow, thank you so so much for the kind words. It means a lot. Really appreciate the support!! ๐๐
My two favourite people here - what a treat! After discovering this video, LolaGerms is my new go-to source of information.
But he's right; it's an excellent video covering the topic comprehensively.
AND itโs fun to watch so it doesnโt feel like a dry academic lecture
Yes! This is truly masterful, and somehow entertaining at the same time?!
โDoctors are people, just like us. They make mistakes. They justโฆ also own boats andโฆ hobby lightweight aircraftโ ๐๐ 20:42
heh ๐คญ
๐ฏ
If public education on covid was better, i genuinely think people wouldn't take it as lightly as they do now. As someone with long covid (but i was also covid conscious before long covid) having to start from "there's no covid anymore" makes getting people to understand who I am and why i need them to change their behaviour around me. Videos like this are so important ๐๐ป thank you
thank you so much friend! i hope this helps you with some of these conversations.
You either truth Big Pharma or deworm yourself from they.
As long as you got five shots everything is fine for you.
Don't believe in your eyes believe in what they say on TV
here to help block out the rude comments & to say that i'm wildy appreciative of all the work and effort that clearly went into it!! i really hope this hits everybody's radars b/c it feels like it should be a required watch
Oh gosh thank you so much for the extremely kind words and support ๐ฅบ๐๐
admittedly, this is really triggering for me to watch so i'm going to have to watch it in bits, but i made it 10 minutes in and i feel so, so validated. 10 minutes is chock full of great information, too, I'm eager to watch the rest of the video. i'm so glad the algorithm blessed me with your channel!!
I have long covid and i also came very closely to losing a family member to COVID-19 in 2020 (he wasn't expected to make it through treatment, but lived somehow, thankfully) I want to thank you so, so much for speaking on this. i am sending this video to everyone i know. it validates my experiences, and many people who are living day to day life with LC, and people who are much more disabled because of this virus. When i speak up about it in the work place, some people take it very seriously, which I'm glad, but there are usually a couple more people who tell me i am being too alarmist. i often feel like there is only a handful of us in my community who actually takes this pandemic seriously. it's exhausting and maddening.
I can't describe perfectly how i feel; i already have a lot of issues as an autistic adult in my late 20s between finding my life direction, battling burn out, and depression. But I can confidently say i have never felt like the same person since i was infected last year. it has changed me, made me significantly more tired, and perhaps its also the political climate, but i am so much more bitter personality-wise. it feels weird to keep living my life normally, going to work and potentially getting re-infected. and everyone pretends nothing is wrong!!
some days are better than others, and the days that aren't great, i feel fatigued for no reason, and a crushing exhaustion that I can't quite place the reason of. once my seasonal allergies kicked in i felt noticeably more miserable than i ever have when i had allergies.
The US government doesn't care about us, at least, that is the unspoken message they are sending. this isn't news; we have been on our own with this pandemic outside of medical intervention since 2020. I might just make a QR code link for this video, print it out, and staple them all over my local lampposts. thank you, again <3
Thank you so so much for sharing your experience ๐ซ I am deeply sorry to hear how you've been struggling, me and most people who still care about covid deeply relate to so much of what you've been feeling. The QR code idea is so amazing!! thank you for watching and sharing. Really hope we will raise enough awareness about this topic to create some meaningful change and help those who are suffering. โคโ๐ฉน
Hi, I've recently had long covid after getting it for the second time late Feb this year. In hindsight, I now realize I already had a milder form of LC from after my first infection . I now feel better than I have done in years. Went onto anti-histamines, an H1 and H2 blocker, NAC, quercetin complex, nattokinase, serrapeptase, plus went hard on B vitamins. Also took probiotics, which I've now replaced with kefir (broader spectrum than yoghurt) and live culture sauerkraut. I hope this helps if you try these things. Have you heard of the nicotine patch cure? This didn't get me well, it was all the supplements, but I experimented with them after I was already well and have them on hand if/when I need to use them again . Get the lowest dose patch (7 mg) and put sellotape over half the patch (don't cut the patch). After 3 days you can try upping the dose, although I went straight up to 7 mg after 3 days, and that was too much for me, so I now know I'll only tolerate a half patch. Try it for a week, have a week's break, and repeat if necessary. Be well!
A world of trying versus a world of not trying .
Trying is the coolest ๐
It's clear that a huge amount of work went into making this video. Thank you so much for all that you do!
thank you so much, friend! it was a lot of work but i think it was worth it ๐
It's so refreshing to finally have someone talking seriously about covid and providing accessible, new info on it in 2024. Here in Australia, people seem literally a little offended if you wear a mask in public, I've had family yell at me for it, moralising it as "trying to put up an antisocial wall" (...for a yogic breathing seminar I was pressured into attending. Yeah, OF COURSE I'M WEARING A MASK? Strangers are heavily breathing on me??)
I seriously appreciate that you face the heavy topics intertwining with this. This year has been one of serious systemic disappointment, and it never gets better if we try to shove the news back in the box.
AND THAT CONCLUSION ๐
I was starting to feel crazy and self sabotaging for constantly trying so hard to be mindful, sustainable, avoid consumption harming others and speak up about heavy things for years, and you put it so succinctly, that partying while the world ends is not it. You've got a subscriber, and a reinvigorated person pushing for change.
I feel the exact same way ๐ฅบ sending strength ๐
omg <333 thank you so much for being in community and in this fight for a better future with me. โค๏ธโ๐ฉน also the yogic breathing seminar sounds like nightmare fuel ๐ซ
@LolaGermsย (oh it was straight up likely pseudo-science lol, I just didn't have the emotional capacity to risk family dramas, it was very meaningful to that family member. NLP and Human Design. I was a lil scared it may have antivaxxer overlap, the mask was NOT coming off and I did a RAT test once I got home)
I find hope in credible education like this, understanding medical risks and the systemic sources of them makes it all feel more worthwhile, AND directs me to something I can physically do to worry less about spreading the effects of them to others. There's a lot of comfort we can find in sound science and community efforts instead of alternative therapies and weird tricks doctors don't teach. Knowledge IS comfort for me ๐
This work is doing more heavy lifting than any public health institution today. To stay on the cutting edge of medical research is no small feat. You are doing a spectacular job interpreting the studies, and taking all of the best discourse and hypotheses from the scientific community and presenting them in accessible terms, even appropriate for teens. I wish I could pay you a salary for this and then some. I will continue to spread your work far and wide to friends and strangers alike. The truth cannot be obscured forever.
This is so kind, thank you so much for the high praise. And thank you so so much for sharing, it's the best way to get this info out there. Your support is deeply appreciated ๐
Another reason you might not know people with LC is that they might not have told you their medical info. I developed asthma and new allergies after covid and have a weakened immune system but it doesn't really come up in conversation much and people are always surprised when I say it's LC
this is totally true! many people also think it's taboo to talk about health issues.
?!?! I developed asthma and horrible allergies to my pets to the point that we had to rehome them not long after a Covid infection from my work. I donโt know why I never linked the two things in my head. I thought my only lingering effect was losing most of my sense of smell. Wowโฆ
@@ArtSharky yes, new allergies are a very common symptom of lc!! i'm so sorry about your pets :(
Our culture is so fucked about health issues, it makes one feel very vulnerable and often ashamed to acknowledge any sort of chronic, serious health condition. It can be a real hurdle simply to admit it to oneself, to say nothing then of the oft titanic challenge of seeking diagnoses from a fragmented health care system. If you present with problems that don't fit objective criteria for one of their coded diagnoses, the answer is too often "it's anxiety" or the like, rather than "it might be something we don't have good tests for yet", and you're left to navigate uncertainly from specialist to specialist, repeating yourself over and over, waiting weeks, months between appointments.
Oh, and maybe you have disability insurance, sure. Maybe. As long as you never try to actually make a claim.
@donaldballjr extremely well said!
FINALLY A COVID CONSCIOUS YOUTUBER- OMFG THANK YOU SO MUCH
Yayy!! Thank YOU for watching!! ๐๐๐
THIS exact thought! so glad to see someone else on here talking about it!
@@MelMitchJackArt thank uuu
We're definitely out there โ๐ผ๐๐๐๐
This video quality is excellent, esp. to be self-produced by one person. PBS, Netflix, YouTube, and other streaming platforms need to see this.
thank you so much for the high praise, Sara!!
My primary care provider actually floated the "immunity debt" idea at me during my last visit. I was so gobsmacked that a supposed professional had actually bought into this idea was justโI didn't even have words....
Argh, that's horrible and infuriating!!
Please elaborate on the "immunity debt" idea.
โ@@clthornsbury4192maybe watch the video before commenting on it
โ@@clthornsbury4192 that's the idea that a year of masking being common resulted in tons of people having lower immune response leading to people being sick more now.
โ@@clthornsbury4192the false immunity debt theory is briefly explained in the video! :-)
Its very upsettting how much distrust has made life harder to deal with people
Thank you so much for speaking truth to power about the importance of protecting ourselves from Covid!
Thank you for watching!! โจ
the dismantling of testing is definitely a problem, i'd contribute a lot of it to the pervasive attitude that covid is "no big deal". i'm in school for a healthcare career that most frequently works in ICUs. my class is less than 2 months from graduation and we are in contact with a vulnerable patient population very frequently. we have been given proper education on disease transmission and prevention and should know how to properly proceed at this point.
when i had a fever, i went to the doctor and tested positive for COVID and thus stayed home. several of my classmates reported symptoms but did not get tested and proceed to the hospital as normal.
even hospital staff don't respect infection control measures because "it's just covid". many disregard the part they play in spreading it to others.
Absolutely! It's unconscionable that hospitals are not implementing proper infection control protocols, such as universal masking (with respirators of course), air cleaning systems and testing. This article by Julia Doubleday talks about this topic: https://www.thegauntlet.news/p/hospitals-are-killing-patients-because . Thank you so much for watching! ๐
โ@@LolaGermsKERRY MULIS invented the "PCR method" ..perhaps you had better research what he said about it's use, WHY it is NOT a "test" of anything, and his words of criticism and challenge to Dr Fauci... Otherwise you're just shilling...
That's terrifying. ๐ฌ
What an exceptional and sobering video!
I've had covid multiple times despite honest efforts to prevent it, and suffered unexplained symptoms afterwards, and this has made the pieces fit. I wish I could go back in time, I fear for my future. At least now I feel more prepared and ready for whatever may come.
I really enjoyed your call to action, and I will try. If anything, I'm commenting to help the algorithm and spread this message.
Thank you for researching and communicating this so effectively
thank you so much for the high praise, John!! we all deserve better and it's horrific that the the COMMON long-term consequences of this infection have not been communicated to the wider public when there are mountains of peer-reviewed medical research spelling out how bad this virus is. we are not short on data showing that this is a danger to us all, we are just short on that data being communicated properly.
so many thanks for sharing and algorithmic boost. i truly want us all to live in a better world!
i'm SO happy this video exists. so so happy. i was putting articles together myself to show my family how covid gets to every system in the body but it just isn't clicking. this video's going to the groupchat next.
Yayy!! Thank you so much for watching and sharing!! Hoping the groupchat reaction will be good haha
Yes, but the spikes made by your vaccine induced process. See Dr Phillip McMillan on Vejon health Channel for the breakdown.
Meaning, the spikes from jabb also end in various organs. Your own immune system attacks these organs as it targets the organs in which they are present. See vejon health, youll see exactly what I mean and will see what the " elephant in the room" is.
Iโm so glad I came across this video. I feel like Iโve noticed I get sick more than I did before, and I just thought it was either due to forgetting how often I got sick before Covid, or that not getting sick as much when everyone was masking and distancing weakened my immune system. This gave me so much more information than Iโve ever seen from the cdc.
I'm so happy you've found it useful!! Yes, it's outrageous that the CDC isn't doing its job in informing the public, so people are left to wonder what the cause of their new issues is with no support. It's so encouraging to see people being open to new information, thank you so much for watching!! ๐
Wow iโm so relieved iโm not the only scientist out there like this. It is certainly not a popular sentiment. This youtuber is wise, intelligent, courageous and well spoken!
Subscribed!
Thank you so much for the very kind words and for supporting the channel!
Agree 100% I'm so glad I found Lola's channel!
literally i wish everyone knew this
me too!!
ditto!
This is very clarifying. As a homebound and ill person myself, I'm delighted to find you. Excellent video.
thank you so much! i truly hope this can raise awareness.
Man. THIS really hit home. My LC was never taken seriously at work and i was pressured to quit. It is so unnecessarily hard talking about having LC with the social media algorithms. Because of the push to suspend disinformation about the virus, ANY TIME i talk or post about it on my platforms i get slapped with a "Learn the facts about COVID-19" warning. Which is, truly cursed. Thank you for making this!
Indeed :( social media platforms have played a huge part in the minimization of the pandemic and the spread of conspiracy theories. I'm so sorry to hear you've been struggling with LC, hope you manage to stay safe ๐ Thank you for watching!! ๐
โ@@LolaGermsIt's so ironic, they were trying to push back on anti-vaxxers but now it's almost a joke ๐๐๐
Brilliant, informative, critically important video. Itโs a massive
contribution to the common good of society. Thank you Lola Germs, for your labor and love.
Thank you so much for your kind words and support, it means a lot!๐
Amazing video! This is such an important issue and you communicated it so well.
As someone with long covid and possibly me/cfs, it often feels like no one is paying attention to just how bad covid still is. It's such a challenge to try and inform friends and family. I will be sharing this a lot! Keep up the amazing work!
I'm so sorry to hear that you are struggling with long covid, indeed it's infuriating that governments are not doing nearly enough to help people, but hopefully, we can and will change it for the better. Hope you manage to stay safe. Thank you so much for sharing and watching! ๐
I came here thinking this was going to be some conspiracy theory that doesn't even mention COVID. So glad you're talking about long COVID.
Well, I'm happy it was a positive plot twist haha. No conspiracies here, just proper science and factual info ๐ thank you for watching!!
@@muustyx Are you blind and canโt see ? Thousands of doctors dropped after taking that poison in Canada when it first came out. You probably donโt know because the media didnโt touch the story. Wake up please.
THANK YOU for foing a better job communicating public health than our own government authorities! ๐๐ We need multi-layered protection NOW
We sure do!! Thank you for watching and supporting ๐๐
I sincerely hope all the people who were ableist and got long covid are more aware now of how shitty it is to be dismissed by others (told youโre faking it for attention) when it comes to your disability/illness.
I know what you mean..Unfortunately, internalised ableism is not uncommon, which is why we need to listen to disability justice advocates and amplify good messaging on this issue as more and more people become newly disabled by this horrible virus. Hopefully, we can build a better world that isn't so riddled with ableism in the future. Thank you so much for watching! ๐
Yeah, unfortunately they're all probably ignoring their symptoms or berating themselves for not being able to "pull themselves up by their bootstraps". I used to be like this until I learned more about chronic illness. :/
@kagitsune Yep.. I agree :( that's definitely one of the important issues on this topic that society will have to grapple with. It's not talked about enough how ableism informs our culture by assigning morality to productivity, a very toxic and harmful mentality that ends up affecting even abled people. It's also ableism that drove a lot of the thinking behind "oh let the weak just die from covid bc the strong ones will survive and that's all that matters" (pushed heavily by governments as well, with messaging such as "it's encouraging that mostly those with previous conditions are dying") that ended up screwing over the whole society bc it turns out it's dangerous for everyone, not just the "unfit". Sorry got a bit carried away with this comment haha, thanks for watching btw!!
@@LolaGermsyeah, unfortunately bias is prevalent including amongst disability activists (beyond just this topic). Some of the worst of it Iโve seen really.
@xymzk I know what you mean :(
Youโre an amazing science communicator
thank you immensely!!
This is great! I feel like youtube restricts any video I make about covid. This had great, accurate, and well-presented information! I will definitely be sharing it with everyone I know!
Thank you so much!! ๐
Doctors have spent the past century only worrying about contact exposure to germs instead of giving a crap about airborne pathogens. If anything comes out of this particular pandemic, hopefully it's a more informed framework for disease prevention (airborne and contact/surface exposure)!!!!
Airborne spread of diseases definitely lacks awareness and understanding and that needs to change asap! Thank you for watching!
Thank you so much Lola. I know an enormous amount of work and energy went into this, and all your videos. That ending made me cry! โค
thank you so much!! ๐ฅบ
Thanks for this. It's a great resource for CC people who are struggling to communicate why they remain cautious to minimizers around them, but I really hope this falls on the eyes and ears of non CC people. I suspect a lot of them may just ignore it or find other flimsy excuses to remain in comfortable denial and ignorance, but hopefully it opens a few eyes. I shared this on r/breadtube, a non CC space for sharing leftist youtube content, and so far the reception is fairly positive (at least in terms of not attracting trolls). CC content is particularly lacking on Youtube. I think you and "Data Report" are the only ones I've come across. Thanks for helping fill this void!
Have you seen Bryony Claire-
"Pretending Covid is over is hurting us all:" youtube.com/watch?v=CV5bj_aZCyg
or
Jaydo Covid-
"Most people know very little about Covid:" youtube.com/watch?v=BWzHaXul3jA
Anyone have other recommendations?
I share your wish for this video to reach non-CC people, it's who we made it for! Thank you so so much for watching and sharing, spreading the word is so important, it means a lot!! ๐๐
@@GeeAre No I haven't seen those before, thank you for the recommendations!
This was so good and informative! Thank you for touching on, well, everything- but especially immunity debt.
A lot of people like to blame this myth for the more widespread immune dysfunction weโre seeing since the start of this infernal pandemmy and itโs not even a thing! Grrrr! :/
Yes!!! Thank YOU so much for watching โจ
This deserves millions of views! Thank you for such an informative and clearly communicated video.
I just got Covid-19 for the first time after taking pretty extreme measures to avoid it all these years. I was already chronically ill and disabled. Feeling very worried for my future and everyone elseโs. And Iโm SO F*CKING ANGRY that it came to this. Our leaders failed us, and we failed each other. Itโs so depressing. When will humans learn? That said, as bleak as things are, I refuse to succumb to nihilism. Iโll go out fighting. Solidarity.
Can anyone point me towards information on countries that got their covid-19 response right, or at least significantly better than the US and Canada?
Thanks again for the amazing video!
thank you so much for the kind words!! and yes, screw nihilism, we're better off fighting together.
as far as countries that had better responses- New Zealand, Australia, and Taiwan all relatively longer-lasting great pandemic responses that they were eventuallly dismantled due to international pressure from the pro-disease spread crowd.
the intial responses in Europe were generally a hell of lot better than North America, but kind of lost steam eventually. i was actually living in Germany when the pandemic started and had a totally different experience than my friends in North America, which def influenced the path i've taken in the last few years.
โ@@LolaGermsI'll have to go back and read some comparative summaries of how the different countries responded!
2 years of Long COVID before my body would allow me to do much of anything, even talking without heart rate spikes, intense pain on 1 side, chest zaps, BP dropping, aphasia, and weird stuff like perception of time got distorted. One time I woke up with what seemed like a microphone amplifying microsounds like slight movement on the pillow. Felt like waking up in a sci-fi movie. Huge cognitively ve improvement on a microclot dissolver, but still crashes. After 2 years, crashes stopped, but lots of other symptoms remain. I feel lucky I could think again, go to the store without shortness of breath, cook again. The pain still comes about once a day and sometimes lasts days. I didnt even know I had EBV till my dr said "your ebv is reactivated!" It's been a looooong 2 years and lots of $ in supplements. Twitter or Xer has a big LC network of researchers, drs, and loads of us with LC at various levels of suffering and recovery.
oof. i am so sorry to hear this. โค๏ธโ๐ฉน i am glad you were able to get microclot treatment that's brought some relief. so many people have absolutely no idea what you and others have been going through.
โ@@LolaGerms I am so lucky that I was paying attention in Twitter and adding long Covid accounts to them stumble on some patient surveys. That was basically a pharmacist who was also ill trying to gather the information of what we were all trying. Then she'd do a deep dive on the research to see what she could unearth. That's where I learned about the microclots studies with nattokinase (please don't try without discussing with Dr if you are at risk of DVT, if on blood thinners already etc). But looking at that study even helped me figure out why some saw no help (they weren't at therapeutic dose from the study). I stopped it for a couple days trying to get ready for some labs and all my symptoms started piling back on till I remembered DUH, get back on that NattoK. Then Dr said I didn't have to stop it for the labs. When I started it in 2023, my Dr as well as many even now, didn't know yet how well it worked but was definitely taking notes.
thank you for making this video. hoping my mom will watch it and get a better understanding of why i havenโt relaxed my covid precautions.
That's exactly why we made it, to make those conversations easier and make this info accessible to people who don't know much about LC. Hope your mom will understand that you're doing the right thing!! Thank you for watching ๐
The irony is that being outside daily (think parks and in nature) can lower your chance of becoming ill, along with many other benefits. But I'd imagine that you wouldn't want to do that, what with one of the precautions being to stay home.
Thanks for that encouraging note: nothing will get better if we don't try. I needed that reminder. ๐๐๐
Awh, I'm so happy you connected with that, I think we all need this reminder from time to time. Thank you for watching ๐
Another reason you may not have met someone with LC: Those with the ME/CFS type are staying home more because of their symptoms and are less likely to be in your school or workplace. This has been an issue with disability visibility for a very long timeโnon-disabled people think disability is far rarer than it is because they donโt see disabled people out and about, either because those disabled people are bedbound, because public spaces are inaccessible, and/or because family members keep them hidden to avoid stigma
Absolutely!! This is a major factor and is also one reason why people think "no one is masking anymore", since people who are protecting themselves from covid/LC are less likely to be inside restaurants or very crowded unventilated spaces for example. Thank you so much for these valuable points ๐
Cfs sufferer. I really appreciate this video
Thank you so much for watching!! โค๏ธ
Love the closing thesis. The world can only be better if we try to make it better!
Indeed!! Trying is the coolest ๐
The worst part is the number of people with long COVID that are unaware of it and have not been diagnosed! Even worse Dr that don't much about it
Indeed those are some of the key problems. Thank you for watching! ๐
I am so happy this video popped up on my feed, the world needs more people that dig deep into the scientific research instead of being spoon fed by cable news.
I don't care for the "you don't have a degree" argument, your presentation was very informative, delivered tons of sources, you engaged the audience (personally I had no idea about the extent or impacts of LC). The people who want to critize you would do it even if you had a degree, they always find something.
i am so happy it popped up in your feed as well!
yeah the "you don't have a degree in this" argument is genuinely such a joke. i first got into reading and understanding academic medical research in order to advocate for myself as a patient with multiple rare conditions, and genuinely if i hadn't done my own research and pushed back against what many doctors had told me, i would have never been diagnosed with the things i actually have and would probably be in immense pain or maybe even dead today (not an exagerration unfortunately).
some of the friendlier doctors i've seen were extremely impressed by my understanding of medicine and have asked if i was a medical student or suggested i go to med school. my actual uni training is related to taking a humanistic perspective on natural science topics. i am actually pretty qualified to do this work, a lot of people just don't recognize any qualification beyond a few specific degrees ๐คท
youtube just hit me with a wake up call about myself with this suggested video...
hope it was a helpful wake up call ๐ thank you for watching!
@@LolaGerms my case is particularly hard to diagnose properly and not just due to a lack of healthcare. i received covid about 6 months after the death of my fiance, so it was easy to just attribute everything to that. the covid i got was powerful, still before the vaccines, i swear the brain fog never fully passed, but the fatigue has only gotten worse over time. its destructive now. again, could be the crippling depression, i dont really know. covid could very well be a contributing factor though. not sure if theres anything i could do about it anyway.
@@sheepwshotguns42 I'm so sorry to hear that you've been struggling :( Given what we currently know, I'd say avoiding reinfection by using respirators and air cleaning systems until we get (hopefully soon) treatments for this condition is the best way to go. I cannot offer specific medical advice in terms of medications, but there are a few doctors who specialise in Long COVID that you could sign up for (unfortunately sometimes the waiting lists can be long). You can also connect with others who are going through the same thing to exchange knowledge, having a community that shares your experience can be really helpful. You can start with the covid action map (link in description) and see if there are any groups in your area. Hope you manage to stay safe and wish you all the best!!
You rock, Lola! So grateful for your devotion to reporting and archiving and promoting the truth about this pandemic, the terrible impacts of Covid, & the reality of Long Covid. We love you!
Omg this is so kind of you to say!! Thank you so much for the love and support, it means sooo much and it's deeply appreciated ๐๐๐
Thank you for the information and overview, the section system helps a lot with folks that can't get through it all in one sitting too!
Thank you for watching, glad you liked the system!! โจ
Finally I think this might be what Iโm experiencing! I have been dealing with an unknown fatigue for almost a year now after falling ill from what I think was COVID a couple years ago. I seemed to have a โfastโ recovery at first. However, as time went on I realized I was unable to do most of the things I used to enjoy. I have had frequent boughts of not being able to speak or move, which at the longest have lasted around 5 hours. It was really scary at first being conscious, in pain, and unable to anything about it until I eventually got used to constant muscle pain and being tired most of the time, compared to before when I was active and sporty most of the day and only needed a reasonable amount of sleep.
That sounds absolutely awful, I'm so sorry that you've been struggling. I hope that with more awareness, treatments will be found soon. Thank you for watching!
@LolaGerms - 2024-07-04
Thanks for watching!๐ฆ Please subscribe, like, comment and share with anyone who needs this info (so..everyone๐ฌ?). Support us on Ko-Fi (and get some perks too) ๐ https://ko-fi.com/lolagerms ๐ This video has been more than 4 months in the making and we truly hope you've found it helpful. ๐ More videos on how to protect yourself from airborne diseases here: https://youtube.com/playlist?list=PLPNcdxhQxkygKVw60upLb4LPzIWqfdKlM&si=-2dz92Wl9az-I8Xc
@michaelhoudecki3657 - 2024-07-08
You should put up an email address in your about so people can contact you with information...
@musingsofazebra - 2024-07-09
4 months?! really appreciate the amount of love and energy that has been put into this important video! thank you :>
@LolaGerms - 2024-07-09
@@musingsofazebra yess, me and my team mate have worked non-stop on this project since the beginning of April ๐ Thank you so much for the support, it means a lot and makes the work all the more worth it ๐
@marge2225 - 2024-07-10
It's vax damage actually.